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Saturday, 31 October 2009

  • Begining some where in the middle...

    I was going through what seemed an endless stack of photos debating what to keep and what not to keep when my Grandfather (whom I affectionately call "Poppy") appeared in the door way. "Why don't you grab yourself a cold one and meet me outside?" he said. I stood up, some what surprised, some what not, as I felt I had been expecting this. To me, "grabbing a cold one" might have been something he would have said to my Mom (if she had still been with us), or perhaps it was in turn acknoweleging me as an adult. Either way, I headed down stairs and made myself a nice large ice tea, in the big green cups that I had used almost 5 years ago when I had still lived there.

    I headed out side into the hot Louisiana heat and standing on the porch had to laugh at myself as I realized Poppy had purposely sat in the middle of the 3 fold up camping chairs, rather then sitting on one end probablly knowing I would have choosen the other. "Have a seat, might as well make yourself comfortable." he said. I laughed nervously and asked "What, am I in trouble?" He shook his head, "No, No. But I want to talk to you about something."

    This was it. I knew it. The talk. The talk we probablly should have had some 10 years before, maybe the talk I was scared I'd never get the chance to have, yet equally afraid of duing to the fact I knew it would stir deep emotions. It was important, it was Big to me in a way as you the reader might not understand as of yet. I tried to keep myself in the present, I wanted to take every detail in and not forget a word. I noticed the white camper behind him, the wind blowing very softly in the trees as if I was watching an HD film, and the brim of his straw cowboy hat. My mind and body seemed to be racing with in itself, making it difficult to take everything in that I wanted.

    He started very slow and steadily, "Very few people will ever know, or be able to understand everything you've been through. Your Grandma and I have personally witnessed all the Hell you've struggled through. I want to tell you that I'm very proud of you and everything you've accomplished"

    My grandfather was a writer and a very eloquent speaker. I took the moment of awkward silence to have a nervous sip of my tea followed by a hard gulp, knowing he was only in the introduction of what must have been a very thought through speech.

    "You probablly don't remember this, but the first time you lived with us you were a small baby. Grandma Pam had you on a schedule with napping and eating and everything. She was really just heart broken when she had to give you back and your mother took you away. The following years you were back in forth with us, like the time we had gotten a call from a bartender and you were wandering around Bourbon Street at night when you were 3. When you came to live with us again, it was like you didn't even remember us and we were perfect strangers to you. (very true I thought...I remember that day) I can't even imagine how rough it must have been for you and all that you had already experienced by that age.Your Grandma and I had did our best in what we thought were for your best interests. No wonder you acted out so much towards us back then."

    "God, I was seriously a monster back then. I don't even know why" I said.( I really was..I used to have such bad fits and tempertantrums my aunts distinctly remember comparing me to the exorcist except for the fact my head didn't spin around. I kicked, spit, hit, screamed and would purposly throw up on them.)

    "No, we just wanted you to be happy, we thought maybe they could deal with you better if you were in a structured family. But if I would have ever have known what was going to happen to you when we sent you to live with Liz and Rick, we would have never have let you go. And if I could go back and change it, I would."

    "Poppy," I said still processing his apology with all that I had learned from my life and both taking and not taking things not for granted. "No one could have known.You shouldn't think about the past like that.You can't go back, and you'll only drive yourself crazy thinking of what should have been and what could have been." I said. My voice sounded nervous, and my nose begin to run with the tears I was holding back.

    "Well I still would if I could. If we had any idea..." He went off. 

    "Yeah, but I wouldn't be who I am today if it wasn't for all that."  I stated finally looking off into the front lawn trying to be positive. I was noticing that it was a normally warm but beautiful day in June and I could hear the once familiar locuses chirping high in the trees. "I too have thought of things I could have done differently, if I could go back and change things. Even with stuff like my Mom".

    "That's besides the point" He said. "I know it wasn't very easy living with me, especially after your mother died. It took a real toll on me, which I don't know if you ever noticed. Those times were really hard on us all."

    I reflected back on the memories, knowing that I had stored most of the thoughts and emotions of my mother dying, and the fact that she had practically abandonned me up till then, in the back of my mind. It was easier to pretend like it never happened, like it was some one I didn't even know. Perhaps it was because at the age of 13 I wasn't able to process it enough to deal with it. Or the fact that, because I didn't think of it all, more emotions, questions, and pain really festered up inside of me and my unconciousness. To me it was the common senario of the kid who was supposed to clean up his room but threw everything in his closet instead because he didn't want to, or just plain couldn't deal with it. Eventually the closet got so full and over piled that when he opens it just a crack to add one more thing, the whole thing comes piling down on him at once. In my state of well...let's call it purposefull ignorance, I had never really considered the affect it had on my Grandpa. I heard about it, how my cousins would tell me it was because I looked so much like my mom and reminded him of her, how other's were affected in my family, but I don't think ever really understood till this moment either. I shared a very different loss, as they actually knew her as a person, and I felt I had never really got the chance.

    "Yeah, "I replied. "I don't really understand it all. Why she left me, why she did what she did. Some times I have questions about things".

    "I have alot of questions too. Some I wish I had the answers to and some I probablly wouldn't want or like" he said. "I know you remember the time I told you that I loved you only because I was obligated to and not because of who you were."

    I nodded. "yeah".

    "I'm very sorry that I said that to you. I want you to know how proud we are of you, living in a different country, doing all these different things. We really like Christian, and I am very happy for the two of you. I think the charity thing with the orphans is a really great idea. I really do."

    "Thank you Poppy" I said. And I meant it. It was a thank you for the talk, our first real talk, and for all those years that I could never see from his point of view but that he took care of me none the less. Just then I saw my grandmother's white Nissan pull up in the drive way. I could feel my cheeks were flushed and quite hot. I gave Poppy a quick hug, still taking in every moment and detail I could. I felt a lump on his back, and how frail his body was. I was happy for the talk, and happy it was over with some closure. I had a date night to get ready for. I was supposed to have dinner and a movie with him and I didn't want to be running late so I headed inside too the cool airconditioning. I was only half way up the stairs when it all started coming out. Just sobs and tears, and everything I had held back almost emotionless for the talk. Chris came in behind me and asked me if I was ok. "Yes" I replied. "We just had a really good talk, and Poppy apologized over alot of things. I'm just a bit emotional."

    "Well that's a good thing right?" he asked.

    "Yeah it's a good thing" I said.

    Chris told me he would wait out side for me while I got ready. Suprisingly it was right after that talk that I learned that he asked my Grandfather for his permission to marry me. The thought had popped in my mind breifly when the conversation had started, thinking perhaps that's why but I knew they were much more serious matters to address and I had pushed it way out of my mind. I knew that night was going to be a fun date night, but I never expected him to propose to me and so much it one day. Then again, that's another story you'll have to stay tuned for. It really felt like putting a divider in a book seperating Part One from Part Two.

    Except this book, is the story of my Life from my eyes.

Friday, 15 May 2009

  • Closure on a Kiss...a true story

    There’s no such thing as closure on a kiss. I very well should have known that, but as our last day together was coming to an end, I just couldn’t seem to stop myself. Neither could he.

    It all felt so surreal. The open Oklahoma night sky held an audience of twinkling stars who nosily peeked through the branches above at us. We had our own personal movie life soundtrack as the slow version of Cascada’s “Every time we touch” started playing on the car stereo in the background.

    I sighed and leaned back against the cool side of the white 1970’s Bronco.

    “I can’t believe this is it” he said.

    “I know” I replied.

    He took a step closer and leaned forward against me.

    “You know, I wanted to ask you to come with me”

    I gave a short laugh under my breath thinking of the irony of the whole situation. When I found out he was leaving to go back to his home country without ever mentioning what was to happen to us, I decided I would leave too. Perhaps it was that without him, the broad yet beautiful horizons of Oklahoma would hold less magic in their sunsets. Perhaps, I was just running away. I was parched to be back by open waters and decided I’d move down to sunny Florida. Besides, we were only friends. We had agreed upon that, knowing eventually his visa would expire and he’d have to go back.

    “This is all so much harder than I thought” I mumbled as I put my arms around him and leaned my head against his chest. “The ticket is bought and almost everything is packed, but now that I’m here with you it’s going to be so much harder to go.”

    “I know, I know” he said as he returned the embrace that told me I belonged there and nowhere else in the world.

    My insides felt like someone was having boxing practice with my organs, in particularly my heart. It was only less than 2 weeks ago that I had first felt like that. I was with him on the couch when it was as if part of me had run into a concrete wall and knocked myself haplessly on the ground, losing all senses except for the sole realization that, I utterly loved him and was undoubtedly entirely in love with him. A majority of myself had been literally struck dumb at the thought and the rest of me seemed to be in some passionate frenzy. After that the aching seemed to go much deeper when he wasn’t near, and yet the pleasure was euphoric when he was.

    I could tell it was going to be a bittersweet goodbye. My eyes were as dry as a dessert but I knew I’d be risking a flash flood as soon as I drove away. I felt so full of different emotions that I was having a hard time processing what was what. Everything in my body craved to be closer to him so intensely that it physically hurt to pull away.

    “So this is goodbye I guess” he said as he leaned his forehead against mine.

    In the sense of teetering on the edge of a cliff knowing you were going to fall, I look back wondering how a kiss could feel so softly warm and wonderful yet ridiculously disconsolate at the same time. Like in the event of falling off a cliff per say, I suppose you should focus more on the electric thrill of falling and the giddy butterfly wings in your stomach rather than knowing you’d be crash landing to your death. It goes by so fast anyways. At least that’s how I remember Einstein stating it, but I believe it was more of an outlook on life rather than the projectile of a single kiss.

    But that’s exactly how it was. We finally pulled away and he began towards his house and I, back into the driver’s seat of the Bronco. There was so much unspoken because it didn’t need to be said to be felt. I could feel the tug on my heart and I knew it was that invisible silver string that connected his heart and mine, except now it felt as if it had turned into a steel wire.

    “I want this last, I need you in my life” were the last words Cascada sang as I began to drive away and as cliché as I knew it was, I knew she was right. It was after that song that “Chasing Cars” by Snow Patrol began to play and I looked up at the stars while driving, questioning if they had some role to play in the radio waves of those particular songs reaching my car. Perhaps it wasn’t everything in nature telling me I belonged with him, maybe it was just the “Let’s make Melody miserable and love sick night” at the radio station. Naturally.

    The next day I flew to Florida. By that evening I couldn’t think of anything but Christian and knew I had to call him.

    “Hello?”

    “Hey” I said slightly drawn out with a sigh of relief to just hear his voice.

    “Hey. How is everything going?”

    “Good, really good. I was just thinking about you.”

    “Oh really? Me too.”

    “Yeah” I said as I smiled and breathed into the phone. “I already miss you”.

    “I know, I miss you too.”

    “So what now?”

    I would have never have guessed that more than three years later we’d still be together, living (and loving) in Amsterdam, the Netherlands. And to this day I’m unsure of why we kiss goodnight, goodbye, or when we’re making up from an argument. We of all people should know that there’s no such thing as closure on a kiss.

     

     

Monday, 06 October 2008

  • Do you have Narcolepsy?

    Please feel free to share! I feel so blessed not to have Caterplexy. I'd love to hear your experience with Narcolepsy- how long you've dealt with it and how you've dealt with it best.
  • Narcowhat!?

    What do you know about Narcolepsy?

    Ever seen those comedies where the person is always falling a sleep in there food- yeah, that's what I associated with Narcolepsy too. Just some silly Hollywood joke right?

    A couple of weeks ago, I was diagnosed with Narcolepsy and I'm sad to report, it's not a joke. It's nice to make sense of all the things now, but I've had to deal with it for 8 years of my life, untreated and with out understanding of what's been going on. Let me give you a small scope of what's it's really like:

    When I was 16 I came home from school and took an immediate nap (because I was a normal teenager, I was exhausted, and I took gifted classes and generally stayed up all night because I was supposed to have insomnia) Half way through my nap I woke up and half of my dream was in my room. It shocked me- so I tried to sit up but found I couldn't move- I was completely paralyzed. I tried to call out "Help"but my throat and neck felt like it was charlie hoarsed. My whole body was in horrible pain. When I finally got out of this state (called Sleep Paralysis) my whole body was sore, scared and very shaken up. My grandmother was convinced I was doing drugs or some one had drugged my coffee mug at school. I was tested for epilepsy and told by people from my church it was attacks by Satan. Since then I've had tons of these attacks- and they don't ever get any less scary. When your hallucination touches you- your mind thinks it's really bing touched and it feels really painful. There are 2 types of sleep paralysis (With and with out Hallucinations) with History dating far back in all cultures (and recorded in famous literature). Take some time to do a little internet research on it. You might find out some interesting things and won't be thinking I'm a nut right now.

    Imagine sleeping, yet never feeling rested- always feeling exhausted. People with Narcolepsy don't get level 4 sleep- the sleep level required for your body to heal and restore itself at night. Not getting the required sleep can cause depression, weight gain, diabetes, stress, higher blood pressure and an overall shorter life span. Sometimes I feel so exhausted, I wouldn't care if I died, as long as I got some rest afterwards.

    I don't consider myself a lazy person- I love to work, to get things done, but as I'm getting older I'm finding it harder. A constant struggle to push myself past exhaustion to get normal things done. If you know me- than you know I'm accident prone-a bit of a klutz. My mind and body go into something called "Micro sleep" (a.k.a a type of sleep walking) where part of the brain shuts down like it's sleeping. It's feels alot like being drunk. Being so tired you feel delirious, hence always bumping into things and hurting yourself. So tired you don't remember things you needed to do, and the things people tell you during this period are often a blur or forgotten the next day. A couple of weeks ago I was in a meeting with my boss and my eyes and head kept nodding off uncontrollably. This was before I was diagnosed- and let me tell you, it was so embarrassing.

    I have my first intake for treatment on Oct 10th. The only cure they have right now is a life time of medication and regulation of sleep. But the questions and fears that are running through my mind are:

    Am I going to miss half my life sleeping or feeling so exhausted?
    Will I be nodding off like a 90 yr old when I'm 40?
    How will I ever have enough energy to have children!?
    Will my children get Narcolepsy also?

    I have no reason to be embarrassed that I have a Neurological brain Disease.

    It's just so frustrating. There are more than 50 symptoms and I've only mentioned a few here. Leg twitching is another one I never even realized until I was asked if it was a symptom of mine. Have you ever jumped out of a deep sleep? They say that your body wakes it's self up to regulate it's breathing. I get woken up 5 times a night by my legs jumping like an electric shock.

    Narcolepsy is underdiagnosed and often missed diagnosed. Maybe you should look up the symptoms and see if you recognize any. If you search "Narcolepsy" on you tube- you'll find the true disorder and the average stereotypical Hollywood joke-which if you take a second look, you'll find isn't so funny. Here is a decent video I found that I think is true to the life debilitating subject. Watch and learn kids:

    http://www.youtube.com/watch?v=_OuEDV1hBYw

Tuesday, 12 August 2008

  • On my last day of being 22

    Today, is the last day that I'll be 22 yrs old.

    22 long years that have flown by like mere days on a summer's breeze and all I have to show for it are quite a few grey hairs, some skin spots and wrinkles. Yes, that's right. I'm 22 and I have wrinkles.

    So, on my last day of being 22 I think I'd like to make a record of a few things that have been on my mind lately. Perhaps I'll look back on this very blog 20 years from now in wonder of how much I've grown, perhaps not. And perhaps I won't live another 20 years, so here it goes:

    Ever since I can remember as a child, I held all the world with such wonder in my eyes. I was so confident that I was bound for greatness of the best kind. The kind, of helping others and making a noticable difference. I rambled on and on to who ever would listen about the adventures I'd go on. When I was 4 I was bound for Egypt, and South Africa. The Great ruins of Greece and the people of China were beckoning my name. I lived to read 1974 copies of National Geographic dreaming that one day I would get the chance to see the things they got to see.

    The other thing I've thought about constantly for as long as I can remember is Death. I remember being awake at night when I 5 years old holding a knife fantasizing about stabbing myself in the stomach to make them all sorry. As I got older I had many misconceptions about death as if it were a made up TV/Movie special effect. By the time I was 13 I had made up my mind that I'd be willing to sacrifice my life inorder to save others, even if they never knew it. By the time I was 16, the world felt like just to much and I wanted nothing more than to die. It all seemed so pointless and life just felt so numb. When i was 18 it was the least of my worries as I was convinced that when I died, I'd be going to a way better place- so it wasn't on my mind as much. Then a couple of years ago, my friend Louis wrote a blog about how one day, we're all going to die. Well that's a duh kind of statement, but then it hit me. I will cease to exist any longer. Suddenly, every breath I breathed just didn't seem to have enough air. There weren't as many hours in a day, and every single night I lay awake thinking of the day it will happen. I am plagued with paralyzing thoughts, inescapable as I try to rest my mind on my pillow.

    Wondering what my last thought will be when I die.

    Will I be ready to die? Will I ever be ready- is anyone really?

    "This is your life, are you who you want to be?"
    A great song by Switchfoot, it still holds true to me today but with different meaning. To me, it means this is your only life- the only chance you get. Are you happy with yourself? Will you be remembered as you'd like when you're gone?

    I used to be Christian. I say "used to" because there are no churches in Amsterdam I can attend. There is no fellowship for me here. Many would claim there is no God here. I would never claim that. But I don't read my Bible as much anymore. The words fall empty and hollow- the morals are basic and true. I question if God is a person, is He of substance or of ecsence? Is he a life force, basic carbon, or our imagination?

    I read the series other wise known as " the Golden Compass". As wish Harry Potter Radical Christians had a hay day with the series so I decided to read it for myself. I understand what many of them were upset about. The series claimed God was a fake- just the first piece of consciousness to realize itself and so he lied to the other beings of consciousness that he was their creator. I hated the obvious discrimination to Christian beliefs and the fact that they wanted to " kill God". It won the Nobel award for " young minds" which I thought was dreadful, because young minds are so easily cultivated. While the end result of the book was that when you die, you simply dissolve into dust, rejoining the rest of the Universe, it can be so damaging to young minds to have nothing to look forward to in the end.

    It's my biggest Fear in Life.

    To go into the darkness, the unknown to find that there is nothing there. It all goes black. I cease to think, to exist, to just be. I'm scarred to death of dying- but what choice do any of us have?

    I am even more scarred of not getting the chance to live the life I always dreamed. To have adventures and a family of my own. To leave behind a legacy and to make the world just a little brighter of a place than when I first came into it.

     

    Tomorrow, I will have lived 23 years.

    I have no career, no car, no plans. I haven't gotten the chance to go to school-and if I still lived in the US it's guaranteed I'd be something screwed on health insurance. At the Average Life span of an American- I'm already 1/4 though my life span.

    I hope to get married to the man I love the most, have a few children, be close to the people I care most about and perhaps some day realize what on earth I'm here for. Guess I can join the ranks of the other 7 billion people on this earth trying to figure out the same thing. I am so blessed. I can only imagine what it must be like to be an orphan, a victim of war or of a disaster. I can only imagine the questions they must ask and the fears they must face. My hope is to inspire hope in those. To do what I can for those people- so perhaps they too, will get the chance to try and figure out what they're here for and what they're meant to do with the precious time they get.

     

undercamerasurveilance

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  • I'm a southern girl right out of New Orleans living with my Dutch boyfriend in Amsterdam. I'm always up for an adventure and some fun!

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    • Posted 4/23/2008 7:16 AM
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